It's been almost two months since Ryan's last update, and it turns out maintenance has been more of a mixed bag than we had hoped. We had a much more normal holiday season than last year, spending time celebrating with friends and both of our families, which was very good

Today marks exactly one year since Ryan was diagnosed with ALL and our lives were turned upside down. In some ways it feels like that was just yesterday and in many other ways it feels like ten lives have passed since then. This has been the most unexpected and challenging

I will start this post with a warning that it probably won't be uplifting, as it's been a pretty hellish few weeks. But I will also say Ryan is doing alright at the moment. My last post was on Saturday, August 28, and the Tuesday evening after that, he had

So a couple of weeks has turned into a couple of months since our last update. I think that's a testament to the feeling of constant exhaustion and burnout we're feeling - and that I know lots of you probably are too, as the COVID roller coaster continues. Ryan started

It's been exactly a month since Ryan's last update, and he continues to be amazingly resilient. He had to continue the at-home antibiotics until just a couple of days ago when the abscess from the ruptured appendix finally went away. After over a month of delays, he was able to

After 12 days of an unexpected hospital stay, Ryan is finally home! His ANC went from 55 on Tuesday up to 135 on Wednesday, so late yesterday afternoon he was discharged. Thank you so much to all of our family members who have sent us amazing videos of your "ANC

Well, it's been a week since our last update and Ryan is still stuck in the hospital. What we hoped would be a quick visit last weekend due to a fever turned into a whole week of waiting for his counts to go up. The fever came down over the

Tired. That's been the continuous feeling over the past several weeks. It's been a month now since our last update and so much has happened, but sometimes even sitting down to write everything out feels overwhelming. So if you're taking the time to read this, thank you. Ryan ended up

Thank you to those of you who said an extra prayer that Ryan would get through Christmas without an ER visit - it worked! After getting the transfusions on December 23rd, he ended up feeling really good for Christmas Eve and Day - a Christmas miracle if you ask me.

Maybe that'll be the next big Hallmark Christmas movie... no? Doesn't roll off the tongue? Well, anyway, this past week has been one for the books. This past Saturday, Ryan was feeling pretty rough all day, which we assumed was due to his blood counts dropping again. He ended up

And so it began... our new normal. Didn't we already have enough new normals this year? That's what we thought too. The doctors at Riley told us that pretty much every patient who had been diagnosed in the second half of 2020 had responded with something along the lines of,